My Story: Life with Dementia

There are almost one million people living with dementia in the UK. Every single person affected by dementia, past and present, is one in a million to their loved ones.

Please know if your family is affected by dementia, you are not alone. Below you will find moving and touching stories about loved ones affected by dementia.

"It was a battle to get my mum diagnosed with dementia nearly fourteen years ago now. If the Fastball test had been around then it could have changed everything for our family..."

"Her name was Elizabeth or "Libby" to most people. She was the most remarkable woman and a real character who I still miss terribly, despite her having sadly died with dementia in 2008..."

"We talked about her illness over the six years, changing the emphasis as time progressed and the worse she got, and discussed what it all meant."


"My mum was a true lifelong learner. To her, reading novels was a waste of time when there was so much to read and learn about in the real world. From her university studies in Archaeology, Spanish and French..."

"My grandfather was a uniquely intelligent and active man. He was a successful engineer and businessman. But also with such a love of literature he went back to university as a mature student to study it."

"Paul was the life and soul of any party, the first to get up to dance and the last to leave, with Maggie, his wife of 14 years, by his side. They were the best of friends throughout their 29-year relationship..."

"If you can picture all of your memories as writings in sand, dementia is the coming in to erase then piece by piece..."

"He insisted that he had to put his jacket and shoes on to go to the airport. Someone was picking him up. He had to go to Burma..."

"My life before dementia. I can picture it, I can recall it 100% almost, but you ask me what I had for breakfast today and I haven’t a clue."

“My father often said when I was a child that if he was ever ill he would much rather be treated by a vet than a doctor..."

“My Mum had been reported by a building society as being in a state of confusion and wandering around the streets of Perth at risk."

Retired journalist and practising artist, Willy Gilder, shares his unconventional story of being diagnosed with Alzheimer's at age 67.

If you have been moved by these personal stories and would like to join others and share your personal experience with dementia, please click the button below.

For more information about sharing your dementia stories with BRACE, please contact us via email:

[email protected]

Thank you for your support.

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